My name is Matt and I had my first seizure when I was fourteen. I was with some of my friends and nobody knew what to do. I acted like nothing was wrong, and so did my friends… I just wanted to forget it happened, which is what I did. That was my attitude most of my life, up until a few years ago.
I started having different types of seizures and, unfortunately, I had one at work one day, so hiding it was no longer possible. I was embarrassed, scared, and confused. I then began to find myself driving to places and not knowing where I was, or how I got there. That meant no more driving for me, even while taking medication and seeing a neurologist. I was still having seizures, terrible headaches, and not sleeping well or much.
I went through the gambit of tests, including MRIs, MRAs, CT Scans and EEGs. All showed nothing – everything was normal. The only thing that could be said for sure was that I was having seizures. I was frustrated and depressed. All those tests ruled out very serious things, but provided no answers. This was the most depressing point in my life.
On November 18, 2016, I woke up in the ER with no idea where I was, or how I got there. I had been found unresponsive and was unconscious for about three hours. I had friction burns (“rug burns”) on top of both of my feet from having a seizure laying face down on a carpeted floor. It was the worst seizure I have ever had. I don’t really remember going down. I just remember I was getting ready for work and that I hadn’t put my socks on yet.
So now I’ve had to change my approach, my attitude, MY LIFE. I’m better educated about epilepsy now and taking different medicine. I’m taking better measures to control my triggers and understand my warning signs (auras) better now. I am fighting for me by working with a neurologist at the local epilepsy center. I’m seeing a sleep specialist and I’m taking time for myself.
I’ve made it one-month seizure free! My story isn’t over yet I’m still fighting. I am more than a seizure disorder or a pending diagnosis. I’m Matt and this is my story and I’m looking forward to being two months seizure free.
If you would like to share your story, please contact Morgan at firstname.lastname@example.org.